Colorectal cancer is a major public health problem. Each year in the UK over 41,000 people are diagnosed with the disease and 16,000 die from it. Overall, survival rates are poor.
High-quality data and analysis would enhance efforts and improve outcomes from the disease.
This collaborative programme aims to bring together the UK’s colorectal cancer data to generate a single resource. It will then be made as accessible as possible to provide the highest quality intelligence needed to drive improvements in the care and outcomes of this disease. HDI are supporting this project by working with the National Cancer Registry within NHS England to extract the relevant data for the CORECT-R project.
CORECT-R is building a national repository that will hold all routine colorectal cancer data available in the UK. The proposed system will, ultimately, have five component parts.
Each of the UK countries has its own secure area for the handling of patient identifiable cancer data and, to avoid duplication, CORECT-R aims to build on these environments and provide a link between them.
The UK Colorectal Cancer Intelligence Hub is a highly collaborative programme involving the University of Oxford, the University of Leeds, the University of Edinburgh, the Bowel Cancer Intelligence UK Patient-Public Group, Health Data Insight and many others.
Morris, E (2019). The UK Colorectal Cancer Intelligence Hub and it’s COloRECTal cancer data Repository (CORECT-R). Unpublished internal NCRAS CORECT-R Protocol, University of Oxford.