Health Data Insight CIC

Using data to improve outcomes in healthcare

Simulacrum v2

This upgraded version of our synthetic dataset not only includes more recent cancer diagnoses but provides a more comprehensive perspective of treatment pathways, with the inclusion of chemotherapy, radiotherapy and molecular diagnostic tests.

Kidney Cancer UK

HDI is providing analytical support to study the current status of kidney cancer diagnosis and treatments in England with the aim of developing a set of QPIs.

PEUGIC root cause analysis

This project aims to investigate the causes of missed cancers at endoscopy by auditing PEUGICs within each endoscopy service.

CanGene CanVar

HDI is pleased to be contributing to the CanGene CanVar programme, a five-year project to centralise data and create an interface between the NHS and research groups which will underpin future expansions in genetic testing.

Cholangiocarcinoma (AMMF)

The purpose of this study is to describe the route to diagnosis and treatment of CCA patients, as well as the geographic variation in these factors across England.

Latest News

Merkel cell carcinoma poster presented at ESMO Congress 2023

Merkel cell carcinoma poster presented at ESMO Congress 2023

Principal Health Data Analyst, Craig Knott was first author on a poster entitled “First-line treatment patterns and overall survival of patients with advanced Merkel cell carcinoma (MCC) in England from 2013-2022: results of a nationwide observational cohort study”...

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Our Aims

HDI is a social enterprise that has been set up to act as a trusted and reliable Information Broker. We aim to do three things:

Improving access

to data and insight for all existing and potential users, service providers and commissioners of healthcare services.


Providing resources

so that patients and the public understand the value of their own and other healthcare data.

Mapping care pathways

by supporting commissioners and providers in the delivery of improved care pathways and outcomes to ensure patients receive the best care.

“Data is changing the way diseases are treated and patients are cared for.
At HDI we find and join-up complex data from across the health landscape and turn this information into insight for patients, the public and healthcare professionals.”

Dr Jem Rashbass, Medical Director, HDI